One of the pluses about blogging and sharing my story with others is that I have been fortunate enough to have gained a few "email pals" all over the place. It's one of those things that would have never happened if I didn't have any medical issue. It's funny because I have not met any of my email friends face-to-face but there is still a supportive "bond" because we all share at least one thing; an understanding of what it's like to have a bad shoulder.
With one of my shoulder pals, she had mentioned she had a dynamic neuromusculoskeletal ultrasound done. This is a specialized ultrasound that views the nerves, ligaments, tendons, etc. while the shoulder is in motion. It sounded very interesting and something that could potentially be very beneficial for me; especially since my problem is when my shoulder is moving. Every test I've ever had done requires my arm to be still. I told my parents about the test and needless to say they were intrigued; especially when the 2 pictures below demonstrate what happens on a weekly basis for no apparent reason. It is not fun and it doesn't feel very pleasant either.
|There are many days where I wake up like this for no reason.|
My muscles clamp down and everything gets all out of whack.
This particular episode happened last weekend. I was
locked this way for 48 hours unable to bring my arm to my side.
|Hand discoloration that occurs every time.|
|Attempting to do a punch-up. It has only gone this high for 18 months.|
|Doing the same punch-up. Only difference is my neck is bent.|
|Straight-arm raise. Past 18 months this is as high as it goes.|
|Holy cow! Bend my neck and I can move!! Who'd a thought?|
In case you didn't know May is HMS/EDS (Hypermobility Syndrome/Ehlers-Danlos Syndrome) Awareness month. I created tshirts to raise awareness. We need a minimum of 30 orders for the shirts to be printed. They are $15 each plus shipping. So far we are over half way there!! This is the link to the shirts. HMS/EDS Relief Fund for Megan
I will be donating a portion of the profits to the EDS National Foundation. EDS National Foundation