In November 2010, three weeks and one day after seeing the "doctor" in St. Louis, I was in Kentucky with my mom seeing Dr. B. I went into the appointment ready with information in my bag on QSS; I was going to bring the information out in case Dr. B told me he wasn't sure what was causing my pain. At this point, I have been seeing Dr. B for 3 years so we have a very good relationship. The atmosphere is calm and my nerves are not flying through the roof. Dr. B sat down and I talked to him about my symptoms. After explaining my symptoms, he said, "You know, I think you might have this rare nerve condition called Quadrilateral Space Syndrome." I looked at him and said, "Oh really, I know exactly what that is. I have information in my bag on it." Dr. B looked at me and just smiled.
After a few seconds went by, I told Dr. B there is a Dr. T in California that deals with QSS. I also told him I had emailed Dr. T but got no response (I didn't expect one since I was not a patient of his). Dr. B then told me he didn't know Dr. T but knew one of his associates. He said he was going to contact the associate, who can then talk to Dr. T that way I could email Dr. T again and get a response. Before we left Dr. B, I told him about what happened in St. Louis and was fearful this doctor in California wouldn't believe me and think I'm "playing a game". Dr. B told me he would send a psychological evaluation to Dr. T's office so they know about my extensive history, my personality type and my mental status. This is one of the benefits of being with the same doctor for a long time. Dr. B knows I am not being dramatic and he also knows that I know my body very well. It is great to have a doctor on your side who believes you and can validate everything that has happened.
When I got home from Kentucky, the phone calls and emails to California started. It is kind of funny because the doctor's email address that I found on the website about QSS originally is the same exact email I used after going to Kentucky. Within one day I had a response from Dr.T. Since I got a response, I knew Dr. B had contacted Dr. T's associate and they have all been in contact. Finally things seemed to be moving in the right direction. When I got the okay to schedule an appointment in California, I decided it was best to go in January of 2011 because I only had one month of school left and my nephew was going to be born in December. So the official date of seeing Dr. T was set for January 6, 2011. Now all there was to do was get through school, meet my nephew, and get through Christmas. It's a good thing the end of the year was busy because it kept me preoccupied.
Next stop is flying to California to determine if I have Quadrilateral Space Syndrome...