tag:blogger.com,1999:blog-3577986169291748937.post8103775120738371865..comments2023-05-07T05:44:43.624-05:00Comments on My "IMpossible" Medical Journey: It's Official! A Diagnosis 2014The Halp Diarieshttp://www.blogger.com/profile/15033393110397475273noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-3577986169291748937.post-26324647872449480042014-01-24T02:01:27.415-06:002014-01-24T02:01:27.415-06:00Hi, I'm 31, and with similar issues too. I ha...Hi, I'm 31, and with similar issues too. I have had one of the surgeries Megan has had (scapular muscle reattachment surgery to reattach my rhomboids and lower trapezius) after a slip on the stairs + hyperflexible-ex- gymnast shoulders = wrecked right arm/shoulder/side (to summarise!). I have a lot of issues with my nerves too. I started writing about mine on my blog a couple of years ago now (surgery 2 years ago this February) and I couldn't find anyone else talking about it online. Now there is definitely more information and people sharing stories - I think it's really therapeutic because you know that person really 'gets' it - even the most empathetic family and friends are wonderful, but nothing like realising someone else actually feels it too - and even then, everyone's story is different. I think you can email me via my username/ blog, if you would like to do so, please feel free. And best of luck with your journey.out of the lyme lighthttps://www.blogger.com/profile/12680081131143924569noreply@blogger.comtag:blogger.com,1999:blog-3577986169291748937.post-9509742921591446722014-01-17T18:47:55.516-06:002014-01-17T18:47:55.516-06:00Hi Megan!
Who knows why I chose your post from of...Hi Megan!<br /><br />Who knows why I chose your post from off support a writer. It was one of many. Often I open a post, read a sentence or two and go elsewhere. Not yours,<br /><br />We have in common life threatening diseases. I am 70. I have IPF, a disease of the lungs. There's no cure.I go through up's and down's as what is expected. I think of life as, I've lived the life I wanted (for the most part) on my terms and now I can view <br />life from a different set of windows.<br />My path from age mid-20's has been about brotherhood, and upliftment as well as we are one.<br /><br />I am one with you. Be of courage as what you are.<br /><br />Belssings<br /><br />frank sayrenoreply@blogger.comtag:blogger.com,1999:blog-3577986169291748937.post-34527321536766880832014-01-15T20:54:32.899-06:002014-01-15T20:54:32.899-06:00i was reading your blog and i think your so strong...i was reading your blog and i think your so strong to go through all this. if you ever need someone to talk or relate to im 27 and have suffered a great deal of chronic pain and dysfunction in my shoulders as well. i dont have this syndrome but i have been a swimmer for 9 years and practically destroyed both shoulders. 4 months ago i had a labral repair on the right shoulder requiring four anchors. i developed frozen shoulder after surgery and couldnt move my arm. now i have tendonitis. i also had two emg done my right rhomboid or lower trap is paralysed so im dealing with the scapular winging and muscle knots as well. same issue in my left arm. i was googling about my condition when i came across ur blog. still no diagnosis for me as to why i have significant muscle atrophy.. my email is fnfiacco@live.com. if you wanna talk anytime i can be a good listener and im close to your age. maybe we can be pen pals. i really hope you get better or find soneone who can help manage this condition. Anonymousnoreply@blogger.com